Consultant Paediatric Neurologist, President, European Paediatric Neurology Society, Royal Hospital for Children. This year will feature over 260 presentations covering all aspects of orphan drug development and rare disease research. From 13th – 15th November you will have the opportunity to participate in a vibrant gathering with more than 90 high-level speakers and 450 participants – bringing together pharma, biotech, government, payers, and regulators! World Orphan Drug Congress USA focuses on the most pressing challenges and opportunities to … World Orphan Drugs Congress, New York, New York. ERGOMED representatives will attend World Orphan Drug Congress from 15 th November till the 17 th November 2016 in Brussels, Belgium.. World Orphan Drug Congress USA LIVE. Senior Research Associate, Division Of Medical Ethics, Senior Director, Pharmacy And Clinical Services, Director Of Science And Regulatory Affairs, Founding President And Chief Executive Officer, Head Of Center For Health Economics And Health Technology Assessment, Republican Center for Health Development, Kazakhstan, Head Of Quality Control And Analytical Sciences, Global Strategic Program Manager – Health & Life Science, Senior Director, Translational Medicine, Head of Rare Diseases, Program Officer, Office of Rare Diseases Research, Actelion - A Janssen Pharmaceutical Company of Johnson&Johnson, Vice President And Chief Statistical Scientist, Executive Director Of Clinical Research And Biology, Fellow, World Economic Forum, Precision Medicine Portfolio, Principal Strategic Consultant, Executive Vice President, Chief Research Officer, Vice President Of Business Development and Manufacturing, Rare Disease Epidemiology Lead Strategist, Vice President of Medical and Scientific Strategy, Head, Health’s Rare Disease Consortium, Executive Vice President, Chief Commercial Officer, Associate Director, Center for Orphan Drugs Research, University of Minnesota, Director of Research Programs, Chief Business Officer And Executive Vice President, Managing Partner, Atheneos Ventures And Chief Executive Officer, Vice President Of Health Strategy And Innovation, Corporate Vice President and WW Head, Real-World Evidence, Associate Director Of Research Operations Undiagnosed Diseases Network Coordinating Center, Chief Executive Officer And Managing Director, Director Health Technology Assessment And Outcomes Research, Chairman and Chief Executive Officer, Chairman, BIO, Principal Investigator at Children’s National Health System, Professor of Radiology, Pediatrics and Biomedical Engineering, Director, Therapeutic Development Branch, Division Of Pre-Clinical Innovation, National Center for Advancing Translational Sciences - NCATS, Fibromuscular Dysplasia Society of America, Director, Center For Biologics Evaluation And Research (CBER), Director, Office Of Orphan Products Development, Food And Drug Administration, Vice President, Regulatory, Parexel Consulting, Oxford University Structural Genomics Consortium, Head Of Patient Partnership, Engagement And Oncology, Alliance for Artificial Intelligence in Healthcare, Co-Founder, President And Chief Scientific Officer, Machine Learning Expert At Novartis, Lecturer At Dublin Business School, National Alliance for Rare Diseases Support - Malta, Head Of Development, Federal State Budgetary Institution, The Center For Healthcare Quality Assessme, European Confederation of Pharmaceutical Entrepreneurs (Belgium), VP, Regulatory Affairs & Program Management, Senior Vice President and General Manager, Head Of Us Commercial, Director, Medical Affairs & Principal Med, Vice President Of Business Unit Lead, Rare Disease, Patient And Health Impact, Director, Office Of Rare Diseases Research, National Center For Advancing Translational Sciences - Ncats. Bringing together a global gathering of 1,200 leaders in orphan drugs from 50 countries, World Orphan Drug Congress USA will feature over 135 presentations covering all aspects of orphan drug development and rare disease research. EVERSANA was a proud sponsor of the 2020 virtual edition of World Orphan Drug Congress USA. 898 likes. De portée international, cet événement s’adresse principalement au grand public. As dedicated advocates of the rare disease … As the largest rare disease conference globally with over 1,500 attendees, we are excited to virtually gather leading industry, government and regulatory authorities, patient advocacy groups, payers, investors and solution providers to meet, … Us ; Site Map ; Follow Us event featured over 260 presentations covering all aspects of Orphan development. National Harbor, Maryland. Us at World Orphan Drug Congress USA is a digital and... Most pressing challenges and opportunities to bring rare disease research Harbor,.... 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